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Definitions

Patient and public involvement

Working with patients, carers and the public to improve everyone’s care
For example, having patient representatives on boards and working groups helping to set priorities for research, co-designing programmes and services or educational training programmes

Patient engagement

Working with patients, their carers and families to personalise and improve their own care
For example, through promoting shared decision-making, personalised care plans, improving individuals’ ability to find and use health information, and routinely using patient and carer defined and reported outcomes and experience

Understanding and using experience

Collecting, analysing, understanding and using the experience of patients, carers and the public to improve their care and the care of others
For example by using patient stories, analysing complaints data alongside survey data at ward level, using the results of the patient and staff survey

Person-centred care

Care that is responsive to and respectful of the needs, preferences and values of individuals

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